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Cindy Koh
Tue, Apr 08, 2008
New Straits Times
Blog brings hope and inspiration to others

IT all started out with curiosity. Daren Lee began fiddling with blogging sometime in September 2006, when he wanted to start a blog for his church's youth service. He subsequently got hooked and went on to start to blog about his older son, Nathanael's epileptic condition.

The blog, www.darentiff.blogspot.com, serves as the main point of connection for friends and family members to get Nathanael's updates and progress in his medical treatment. It contains details on how the four-year-old was diagnosed with infantile spasm after going through a series of tests at a local private hospital since he was a newborn, how he started treatment (medical and physical therapies) at a public hospital, and the family's struggles, joys and courage.

It has been a stressful journey for this father of two and his wife Tiffany Tang, as they juggle Nathanael's condition, work and other responsibilities which can deem the blogging routine challenging. But what kept him and Tiffany (she helps update the site as well) going was the people's responses to the blog.

Darentiff.blogspot gets from 50 to 100 hits per day and this speaks volumes for Lee, as it is educating and creating awareness of epilepsy, which is often a misunderstood neurological disorder.

According to a World Health Organization report for the Southeast Asia region, at the global level, it is estimated that there are nearly 50 million persons suffering from epilepsy, of which three-fourths or 35 million are in developing countries. Many people who have family members with such disease are still reluctant to talk about it, as it is seen as a curse or an incurable evil disease.

"The responses have thus far been very encouraging and through the site, the respondents learned, rejoiced and were inspired or ministered to," Lee says. The family has also made friends online that led to five families from different race and religion forming a support group of sorts. But most rewarding of all, Lee says, is that the family has grown closer through blogging and sharing of information.

The blog has also ignited interest from international viewers, one of whom is a Swedish professional who asked if he could get a video recording of a therapy - Snoezelen - that Nathanael is going through. (It is a room equipped with special lights and music to stimulate senses in the child.)

In addition to that, Lee was invited to write about fatherhood for a Singapore family magazine after the editor visited the blog.

Lee also found out that Malaysians are a compassionate lot. After putting up a posting on Nathanael's need for a swing to be set up for his occupational therapy session at home, two good Samaritans offered to do it and they are from the Klang Valley. "What are the chances of knowing anyone who could set up a swing here? It's amazing!" Lee exclaims.

Looking at the hope and inspiration the blog has given to those who visit, Lee sees himself still blogging in five years' time, perhaps even further into the future. At Press time, he is setting up a domain, www.darentiff.com, to expand on family interests.

 

 
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